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19–22 APRIL, 2017, BARCELONA, SPAIN
12:30–12:40
S2-4 (LO)
EVALUATION OF SOCIAL LIFE OF PATIENTS
WITH BLADDER EXSTROPHY
Birsen EROGLU
1
, Ezgi ALTUN
1
, Meltem POLAT
1
, Sibel TIRYAKI
2
, Ali AVANOGLU
3
and Ibrahim ULMAN
3
1) Ege University, Pediatric Surgery, Izmir, TURKEY - 2) Ege University-faculty of Medicine, Department of Pediatric
Surgery, Division of Pediatric Urology,, Izmir, TURKEY - 3) Ege University, Pediatric Surgery Division of Pediatric
Urology, Izmir, TURKEY
PURPOSE
Patients with bladder exstrophy experience health and social adaptation problems which effects
their school, work and sexual lives. The aim of this study is to evaluate social lives of bladder
exstrophy patients over 18 years of age.
PATIENTS AND METHODS
Nineteen adult exstrophy patients who have been followed in different centers constituted the study
sample. Patients were contacted through a closed social media group. Data was collected with
face-to-face or telephone inquiries.
RESULTS
Mean age of 19 patients was 27.6 years (5 female, 14 male). Eighteen patients reported to use
clean intermittent catheterization for continence. Three patients were able to empty their bladders
with voiding. Fourteen patients were continent; however, the patients reached continence at a me-
dian age of 15 (3-31) years. Nine patients graduated from university, 9 high school and 1 primary.
Three patients were still students. Only one patient was unemployed. Sixteen patients had disability
reports. Twelve patients used these disability reports for gaining their jobs according to National
Labor Act. Ten patients admitted to share their condition with their friends and relatives. Sixteen
patients were in a relationship, three of these married and had children. Nine patients had sexual
experience. All patients had to come to hospital with at least 2 months intervals for any reason.
CONCLUSIONS
Interview with adult patients revealed that they can somehow manage their school and work life but
experience more problems in relationships. Disability reports seem to provide benefit in finding jobs
so guidance for it is strongly recommended.