ESPU Congress 2018 - Abstract Book

216 29 th CONGRESS OF THE ESPU S1: FUNCTIONAL VOIDING DISORDERS (part. 1) Moderators: Jens Larsson (Sweden), Angela Downer (UK) ESPU-Nurses Meeting on Thursday 12, April 2018, 09:20–09:50 09:20–09:30 S1-1 (LO) INFORMATION EVENING FOR PARENTS AND OTHER ADULTS DEALING WITH CHILDREN WITH FUNCTIONAL BLADDER AND BOWEL DISORDERS Anneli SAARIKOSKI  1 and Riitta KOPPELI  2 1) Helsinki University Central Hospital, Children's hospital, Helsinki, FINLAND - 2) Pikkujätti lasten ja nuorten lääkäriasema, Helsinki, FINLAND PURPOSE Functional bladder and bowel disorders (BBD) are common in otherwise healthy children. There is lack of accurate knowledge how to support these children in different settings (home, school, day-care, healthcare). The aim of this paper was to evaluate if an open information session is beneficial for parents and other adults around children with BBD. MATERIAL AND METHODS We organised four open information evenings, two hours each, between September 2015 and February 2017. The participants were adults living or working with children with BBD. The infor- mation was carried out based on basic life-style advice according to the ICCS definitions. The participants were encouraged to ask questions and share experiences. At the end of each session the participants (n=233) were asked to fill short evaluation forms with six statement using scale 4 (totally agree) to 1(totally disagree) and give open feed-back. RESULTS Response rate was 69 % (n=161). The participants evaluated the information session beneficial (mean of 3.7). The given information gave them useful instructions to support the children. The most important feedback was that there is lack of adequate knowledge concerning BBD both in primary health-care settings and in day-care organisations. Especially important to the parents was possibility to share experiences with each other. CONCLUSIONS The results underlined the importance of open information events like these to adults dealing with children with BBD. The results provided encouragement to develop new ways to share information, for example an information website www.pissarakonpomoksi.fi and a closed Facebook group for parents.