216
29
th
CONGRESS OF THE ESPU
S1: FUNCTIONAL VOIDING
DISORDERS (part. 1)
Moderators: Jens Larsson (Sweden), Angela Downer (UK)
ESPU-Nurses Meeting on Thursday 12, April 2018,
09:20–09:50
09:20–09:30
S1-1 (LO)
INFORMATION EVENING FOR PARENTS AND OTHER
ADULTS DEALING WITH CHILDREN WITH FUNCTIONAL
BLADDER AND BOWEL DISORDERS
Anneli SAARIKOSKI
1
and Riitta KOPPELI
2
1) Helsinki University Central Hospital, Children's hospital, Helsinki, FINLAND - 2) Pikkujätti lasten ja nuorten
lääkäriasema, Helsinki, FINLAND
PURPOSE
Functional bladder and bowel disorders (BBD) are common in otherwise healthy children. There
is lack of accurate knowledge how to support these children in different settings (home, school,
day-care, healthcare).
The aim of this paper was to evaluate if an open information session is beneficial for parents and
other adults around children with BBD.
MATERIAL AND METHODS
We organised four open information evenings, two hours each, between September 2015 and
February 2017. The participants were adults living or working with children with BBD. The infor-
mation was carried out based on basic life-style advice according to the ICCS definitions. The
participants were encouraged to ask questions and share experiences. At the end of each session
the participants (n=233) were asked to fill short evaluation forms with six statement using scale
4 (totally agree) to 1(totally disagree) and give open feed-back.
RESULTS
Response rate was 69 % (n=161). The participants evaluated the information session beneficial
(mean of 3.7). The given information gave them useful instructions to support the children. The
most important feedback was that there is lack of adequate knowledge concerning BBD both in
primary health-care settings and in day-care organisations. Especially important to the parents was
possibility to share experiences with each other.
CONCLUSIONS
The results underlined the importance of open information events like these to adults dealing with
children with BBD. The results provided encouragement to develop new ways to share information,
for example an information website
www.pissarakonpomoksi.fiand a closed Facebook group for
parents.